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Data Collection



Every EUROCAT register routinely collects a dataset of standard information (core variables=33, not core variables=62) on each case of congenital malformation in its area of coverage. Cases include livebirths, stillbirths, fetal deaths and terminations of pregnancies for fetal anomalies (TOPFA).


Data are transmitted twice a year (in February and October) to the JRC-EUROCAT Central Registry.


This section describes all aspects realted to the data collection and submission to the JRC-EUROCAT Central Regsity, including the detailed Guidelines for registration and the EUROCAT Data Management Programme (EDMP).